On May 12th thousands of people across the UK (and beyond) will be marking Fibromyalgia Awareness Day. This year’s theme centres around “C.A.R.E. & Make Fibromyalgia Visible” – encouraging people to Contribute, Advocate, participate in Research, and Educate others about fibromyalgia. According to the National Fibromyalgia and Chronic Pain Association (NFMCPA) the day is all about finding:
“…creative ways to help other people know about this invisible illness. Hearing people say, “But you look so good,” underscores the importance of speaking up about chronic pain illnesses.”
You can become involved in Fibromyalgia Awareness Day by participating in one of the many local events or activities happening across the country, including: picnics, dinners, walks, and Zumbathons! Find out about an event happening near you by clicking here.
It’s also worth checking out the event’s facebook page to find out more and connect with other participants. Although the main focus of the Fibromyalgia Awareness Day is May 12th, it’s worth knowing that there will also be a range of activities happening throughout the rest of the month.
If you are feeling inspired to get involved, here are a few suggestions of how you might help to organise an activity or promote the day:
- Organise a fundraising event to help promote awareness and raise funds for a worthy charity such as: Fibromyalgia Association UK. For example, how about organising a cake sale at work?
- Start up a social media support group or page
- Write a blog sharing your experiences and any helpful advice that has helped you to cope with fibromyalgia
- Spread the word about Fibromyalgia Awareness Day by sharing an update about it on your facebook page
- Create a support network in your area by using meetup.com
Fibromyalgia can be an isolating experience and it is easy to feel alone in your suffering. Fibromyalgia Awareness Day offers a great opportunity to feel part of a wider community, and it’s also a wonderful reminder that joining a supportive network can make the world of difference to your ability to cope with the illness. Support groups may be found through your local doctor’s surgery, library or hospital, as well as on the intenet. Joining a group can be a great way to share your experiences and find an understanding ear; or seek advice, education and the right encouragement. Often, the partners of sufferers are also welcome to attend group sessions: enabling them to gain a better understanding of the nature of your illness and what they can do to help.
Do let us know if you get involved with Fibromyalgia Awareness Day, we would love you to share details of any events that you get involved with.
We do not endorse any research, studies or sources mentioned within our blogs and comments. Furthermore, we do not endorse any medical advice provided, and would strongly recommend anyone seeking medical advice to contact their local healthcare provider.