Useful Links – Brian Barr
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Useful Links For CRPS Sufferers

Charities

FMA UK: The UK’s main national charity for fibromyalgia sufferers. The Association provides medical information for professionals and operates a national helpline. Lists all the national and local fibromyalgia support groups.

UK Fibromyalgia: Full of resources and useful articles for fibromyalgia sufferers. Includes an active forum with over 6,000 users!

Fibro Action: Their mission is to educate people about fibromyalgia, including people with fibro, their family, friends and carers, healthcare professionals and the public at large, as well as providing support to patients..

ME Association: Provide information, support and practical advice for people who are affected by ME/CFS/PVFS. They also fund support and research, and give education and training.

Arthritis Research UK: The main UK charity for arthritis. Funds research, provides information and resources for arthritis sufferers.

Resources

The Patients Voice: A patient forum where patients, their families, carers and friends can participate in a wide variety of medical market research projects about health care.

Let’s raise awareness of Fibromyalgia: This Facebook page is a support group for sufferers that have friends, family and even doctors who are sceptical about Fibromyalgia.

Adrienne Dellwo: An experienced journalist who was diagnosed with fibromyalgia in November 2006. She posts articles 2-3 times a week with advice for sufferers and updates on the latest research.

Fibro Warriors: Facebook page where sufferers can post updates (and feelings) about their condition, and can read daily updates on the medical and scientific research of fibromyalgia

PainSupport: Is packed with self-help techniques for reducing stress and chronic pain of any kind.

The British Pain Society: The British Pain Society has a membership of over 1,500 and is involved in all aspects of pain and its management through the work of the Council, Committees and Working Parties.

Living with Pain: A new website set up by Judi Priestley, dedicated to raising the awareness of CRPS (Complex Regional Pain Syndrome) and sleep deprivation.

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